Patience is a Virtue

It’s been one heck of a week around here.  I feel like I’m being called to write a blog topic that’s very close to my heart, one about the Holy Spirit being the Abiding Comforter, and I will.  I’ve had so many ask for progress reports, though, so we will start with that today.  Hopefully, I can get the magical blog out tomorrow.  And it will be magical!  The Abiding Comforter always is, to me anyway.

Last Friday I had a ‘minor’ surgery that ended up being anything but.  Dr. Barlogie wanted to excise an axillary (armpit) lymph node that has been plaguing me for years.  I’ve already had TWO surgeries on this lymph node that were unsuccessful.  It’s a slippery little sucker;)  Seriously, it’s slippery!  Every time they lift my arm on the operating table it slides under my chest muscle.  Sooo, what does that mean?  It means that they dug and dug and cut and cut and pulled and pulled and yanked and yanked until they finally got a good enough hold to get that lymph node out.  That left me in super bad shape.  Super.  Super enough that I got to hang out in the hospital for two days getting intravenous Dilauded every hour.  Not fun peeps.

During that surgery I was also given a fantastic permanent accessory called a Central Venous Line, or CVL for short.  This is a direct line into my chest via 3 tubes.  No more shots, no more IVs, no more blood draws for me!  Seriously, this is AWESOME!  It looks gnarly to have a hole in your chest, but it is AWESOME.  They are over the top infection control with the CVL, though.  I had to have the covering changed yesterday, and they wouldn’t even let me watch what they were doing because they didn’t want me breathing on the site!  This makes mom a little nervous since she is the one that has to flush the line every once in a while.  She took a class at the hospital yesterday so she wouldn’t accidentally kill me while doing it.  Poor mom doesn’t much like my sense of humor;)

I met with Dr. Barlogie again on Monday.  I was supposed to start my test dose of Velcade (chemo drug) on Monday afternoon, after our doctor’s appointment.  Once again, I got the frustrating news that we would not, in fact, be starting that afternoon.  His first reason was that my surgery was just too invasive.  I needed time to heal, and while a test dose is very low chemo, he didn’t want to start me on anything until he was confident there would be no infection.  His second reason was a bit more difficult to swallow.  He found evidence of something ‘suspicious’ in the node they removed.  This will require more testing, more sitting and waiting.  What a bummer.  We won’t have any more news on what the something suspicious is until next Wednesday, and my test dose of Velcade has been pushed to Tuesday.

The rest of this week has been plenty eventful.  I move out of the apartment that I’m in at the end of this month, so we’ve been shopping for new living space.  I think we’ve found a new place to live, and they should be able to accomodate us for the entire 9 months!  This is a HUGE burden lifted.  Speaking of places to live, I’ve been asked for my new address many times so I will add a new page to this blog with the information.  We’ve also been spending this time applying for co-pay assistance through several charities and patient programs.  I had no idea how many wonderful organizations there are out there.  I think I’ll create a page on this blog that lists them for people wanting to donate to cancer charities.  It’s so important, friends.  The cost of being diagnosed with something like this is astronomical.  Not only for me, but for my care giver as well.

Speaking of care giver, I’ve got an awesome one!  She gets a little mini break this weekend while the hubby and kids come to visit me.  Bill is coming up, too, so they will have a nice weekend getaway.  It’s supposed to be a beautiful weekend so we will visit some of the local parks and museums, maybe even the Zoo.  Then Lee gets to go with mom and me to the hospital to see how my CVL gets flushed and be there for my test dose of Velcade on Sunday.  I’m sure he is SO excited!   I’m just excited to see them…I miss my family.

That is all for this week.  Sitting and waiting seems to happen quite a bit in the cancer world, but I would much rather sit and wait than jump into something that threatens my life just because I wanted things to hurry up.  It’s time to be patient!

More than that, we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope,’  Romans 5:3-4

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13 thoughts on “Patience is a Virtue

  1. Steph,
    I am constantly floored by your positive attitude, humor, and strength. You are amazing and I love you. Take good care my friend, and bless your precious mom and family for being the root of your strength.

  2. My heart aches to watch you and your family go through all the trials and tribulations you are facing, but then it sings when I firsthand experience your faith, courage, spirit and smile. My love for you is immeasurable and I will always be with you during this journey and others. I love you!

  3. Psalms 138:3 On the day I called, you answered me; my strength of soul you increased.

    YOU are STRONG and will beat this!! God is with you!! Love you so much Steph!!

  4. “I pray that out of his glorious riches He may strengthen you with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ and to know this love that surpasses knowledge — that you may be filled to the measure of all the fullness of God.” (Ephesians 3:16-19) My go to verse! We love you guys. Hope you have a super weekend with the family. Scott, Diane, Sarah, Cora and Wesley

  5. I have always prayed for the protection of my family. But since the beginning of your fearless journey it has been my particular, constant prayer that God send guardian angles and the Holy Spirit to comfort, protect and attend to your every need and those of Lee, the kids and your Mom as you beat this monster. I know these prayers are shared and offered by your many friends, supporters, loved ones and people who don’t even know you except by some person or circumstance in common. I also know these many prayers will continue to be made, and as thus far, will continue to be answered. Love you daughter.

    Bill Greenwood**Sent from my iPad

    >

  6. Steph, I am so sorry to hear how your week has gone to far…. I hope that you get to enjoy the kids this weekend and hope that you have some pain relief. Just know that you are in our prayers on a daily basis and we wish that we were there to help out in some way.
    Give Lee, your mom, Bill, and the kids a hug (gentle) for us. We love you.

  7. Steph no doubt your patience has been tested multiple times, but things happen for a reason and if all this caution your doctor is taking before starting your treatments is a good thing. God is guiding him every step of the way, so no doubt the end result is going to be successful. Our prayers are with you, Lee, Harper, Gunnar and of course your wonderful mom and family. We love you very much.

  8. I really like what you guys tend to be up too.
    This type of clever work and exposure! Keep up the great works guys
    I’ve incorporated you guys to our blogroll.

  9. Have you ever considered writing an e-book or guest authoring
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